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Research Participants' Bill of Rights
Joining a research study is an important personal decision.
Participating in a study is your choice.
Be informed. Ask questions. Get answers.
You have the right...
- To be treated in a caring and polite way.
- To be told what the study is trying to find out.
- To understand every form you are asked to sign or fill out.
- To understand what will happen during the study, and what makes it different from standard medical care.
- To be told about possible side effects or discomforts that might happen during the study.
- To be told about any benefits from being in the study.
- To be told about other treatment options, and how they might be better or worse than the study treatment.
- To be told what treatment is available for you if any medical problems arise while you are in the study.
- To ask any questions about the study.
- To take your time when you are deciding if you want to be in the study.
- To be told about new information that comes up during the study that could affect your decision to stay in the study.
- To refuse to be in the study, or to change your mind about being in the study after it has started.
- To receive a copy of the consent form you sign if you decide to join the study
Questions? Contact sber@tufts.edu.